Galactosemia

My son just received yet another diagnosis. He may never talk, may never walk alone to school. It’s time for me to mourn what I thought he could be.

"The last two months have not been easy. We know little more now than we did before Isaiah was just about to start school. That says much about the process and the tremendously limited resources."

"I feel like I'm tossing him to shark-infested, under-funded waters with children who can't possibly understand why he sees and feels things differently."